Alison Midstokke is more than just a name; she’s a beacon of resilience, creativity, and advocacy. An American actress, model, and activist, Alison has carved a unique path in the entertainment and fashion industries. Born with Treacher Collins syndrome, a condition that affects facial development, she has transformed personal challenges into a platform for empowerment and change. Her story is one of courage, talent, and an unwavering commitment to redefining beauty standards.
In this article, we’ll dive into Alison’s life, her career milestones, and her advocacy work. We’ll explore how she’s broken barriers in Hollywood, her journey from a small town in Idaho to the bustling streets of New York City, and why her story resonates with so many. Along the way, I’ll share insights from my own experiences in the creative world, drawing parallels to Alison’s journey and offering a fresh perspective on her impact.
Early Life: Growing Up in Sandpoint, Idaho
Alison Midstokke was born in Sandpoint, Idaho, a small town known for its scenic beauty and tight-knit community. Growing up with Treacher Collins syndrome, Alison faced unique challenges from a young age. This genetic condition affects bone growth in the face, leading to distinct facial features. But Alison’s story isn’t defined by limitations—it’s about how she embraced her differences and turned them into strengths.
In an interview with Inspiring Lives Magazine, Alison shared that her classmates in Idaho were generally accepting, thanks to the laid-back West Coast vibe. “I was never 100% accepted,” she said, “but I was outgoing, the type of kid that scared bullies away.” Her confidence and charisma were evident early on, shaping her into the trailblazer she is today.
As someone who grew up in a small town myself, I can relate to the sense of community Alison describes. There’s something special about small-town life—it fosters resilience and a sense of belonging, even when you feel different. Alison’s ability to navigate social dynamics as a child laid the foundation for her bold career choices later in life.
Breaking into the Entertainment Industry
Alison’s journey into the entertainment world began at the tender age of six. She started taking acting and dance classes, igniting a passion for performance. By nine, she landed a role as a featured extra in a film starring Joey Travolta, a moment that sparked her love for acting. This early exposure to the industry was a glimpse of what was possible, even for someone who didn’t fit Hollywood’s conventional mold.
Her big break came years later with her role in the 2018 film Happy Face. Alison’s performance earned her a nomination for Best Supporting Actress at the 8th Canadian Screen Awards in 2020 and a Best Actress award at the 2019 FearNYC Festival. The film, which explores themes of identity and societal beauty standards, resonated deeply with Alison’s personal mission.
I’ve had the chance to work on small creative projects myself, and I know how daunting it can be to step into a space where you’re not the “typical” candidate. Alison’s success in Happy Face shows that talent and authenticity can shine brighter than any stereotype. Her role wasn’t just a performance—it was a statement about embracing individuality.
A Multifaceted Career: Acting, Modeling, and More
Alison’s career isn’t limited to acting. She’s also a professional model, having started at 15, and even served as the official hand model for Colace, a well-known pharmaceutical company. Her modeling work has included collaborations with prominent artists like Rick Guidotti and Andres Hernandez, showcasing her versatility and unique presence.
Beyond the camera, Alison has dipped her toes into fashion design, working as a costume designer’s assistant and wardrobe director for various productions. She even styled R&B singer KISSK, blending her creative instincts with her love for fashion. Her ability to juggle multiple roles—actress, model, designer—speaks to her relentless drive and creative spirit.
Reflecting on my own creative pursuits, I’ve found that wearing multiple hats, like Alison does, is both challenging and rewarding. It requires adaptability and a willingness to learn, qualities Alison embodies. Her work in fashion and modeling isn’t just about aesthetics—it’s about challenging norms and creating space for diverse voices.
Advocacy and Impact: Redefining Beauty
One of Alison’s most significant contributions is her advocacy for people with facial differences. She’s served on the young professional board for myFace.org, an organization associated with NYU that supports individuals with physical disabilities. Alison raised $13,000 in her first year, connecting artists with the organization to boost awareness. She’s also involved with Faces, a community offering support and advice for those with similar experiences.
Her activism is deeply personal. Living with Treacher Collins syndrome, Alison has faced scrutiny and judgment, but she’s turned those experiences into fuel for change. In her Inspiring Lives interview, she spoke about using meditation and visualization to overcome negativity: “If someone is harassing me, I visualize that person vanishing into thin air.” This mental resilience has helped her thrive in industries often obsessed with perfection.
I’ve always admired advocates who use their platforms to uplift others. In my own work, I’ve seen how storytelling—whether through writing, film, or art—can shift perspectives. Alison’s activism does just that, encouraging people to see beauty in differences and fostering a more inclusive world.
Notable Film Roles and Projects
Alison’s filmography is a testament to her talent and commitment to meaningful projects. In addition to Happy Face, she starred in Chained for Life (2018), a film about a movie crew making a story about facial deformities, drawing parallels to the 1930s film Freaks. Her role in A Different Man and Lady Bogey further showcases her range as an actress.
Each project Alison chooses seems to align with her mission to challenge stereotypes and promote visibility for those with facial differences. Happy Face, for example, follows a young man who infiltrates a therapy group for disfigured patients, using his story to confront society’s obsession with beauty. Alison’s performance was both raw and powerful, earning her critical acclaim.
As someone who’s followed independent cinema, I can say that films like Happy Face and Chained for Life are rare gems. They don’t just entertain—they provoke thought and spark conversations. Alison’s involvement in these projects highlights her ability to choose roles that matter, both to her and to her audience.
Life in New York City: A Hub of Opportunity
After leaving Idaho, Alison moved to San Francisco before settling in New York City, where she’s lived for over a decade. New York’s vibrant arts scene provided the perfect backdrop for her multifaceted career. From modeling to acting to advocacy, the city offered endless opportunities to grow and connect.
In her OnlineAthens podcast interview, Alison discussed how moving to New York allowed her to pursue her dreams while advocating for others. The city’s diversity and fast-paced energy suited her outgoing personality and ambitious goals.
Having spent time in big cities myself, I understand the pull of places like New York. They’re challenging, yes, but they also push you to grow in ways smaller towns can’t. For Alison, New York wasn’t just a place to live—it was a launchpad for her dreams.
Overcoming Challenges with Positivity
Alison’s journey hasn’t been without obstacles. Growing up with Treacher Collins syndrome meant facing societal biases head-on. Yet, she’s never let those challenges define her. In her Inspiring Lives interview, she shared how she worked in an office job that felt like “the opposite of The Devil Wears Prada.” That experience taught her resilience and helped her stop caring about others’ opinions.
Her advice to children with Treacher Collins is simple but powerful: “You can do anything as long as you are open to improving yourself. Hard work does pay off.” This mindset has guided her through auditions, rejections, and successes, making her a role model for anyone facing adversity.
I’ve faced my own share of setbacks in creative projects, and I’ve learned that perseverance is key. Alison’s story reminds me that challenges are just stepping stones to growth. Her positivity is infectious, and it’s no wonder she’s inspired so many.
Inspirations and Role Models
Alison draws inspiration from figures like General Romeo Dallaire, who stayed in Rwanda during the 1994 genocide to help those in need, and Helen Keller, whose determination to communicate despite immense challenges left a lasting impact. These role models reflect Alison’s own values of courage and service.
In my own life, I’ve looked up to people who push boundaries and challenge norms. Alison’s admiration for Dallaire and Keller shows her commitment to making a difference, not just for herself but for others. It’s a reminder that our heroes shape the kind of impact we want to have.
Advice for Aspiring Creatives
For those looking to follow in Alison’s footsteps, her story offers valuable lessons. First, embrace your uniqueness—Alison’s authenticity is her superpower. Second, persistence is everything. From her early acting classes to her award-winning roles, Alison’s hard work paid off. Finally, use your platform for good. Whether through advocacy or storytelling, Alison shows that success is about more than personal gain—it’s about lifting others up.
In my own creative journey, I’ve found that staying true to yourself is the best way to stand out. Alison’s career is proof that authenticity resonates, whether you’re on a film set or in a boardroom.
Why Alison Midstokke Matters
Alison Midstokke’s story is one of triumph over adversity, creativity in the face of convention, and advocacy for a more inclusive world. Her work in film, modeling, and activism challenges us to rethink beauty, embrace differences, and pursue our dreams relentlessly. From Sandpoint to New York, from extra to award-winning actress, Alison’s journey is a testament to the power of resilience and purpose.
As someone who’s navigated the creative world, I see Alison as a trailblazer who’s paving the way for others. Her story isn’t just inspiring—it’s a call to action. Whether you’re an aspiring actor, a dreamer in a small town, or someone facing your own challenges, Alison’s life shows that different is beautiful, and hard work can take you anywhere.
Conclusion
Alison Midstokke is more than an actress or model—she’s a force for change. Her journey from a small-town girl to a New York-based advocate and performer is a story of grit, grace, and impact. By embracing her unique identity and using her talents to uplift others, she’s redefining what success looks like in Hollywood and beyond.
If Alison’s story has inspired you, take a moment to reflect on your own dreams. What makes you different? How can you use that to make a mark? As Alison herself might say, “Beauty is different, and different is beauty.” Let’s celebrate that truth and keep pushing forward, just like she does.
